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WELCOME,

TO MY LIFE

IN WORDS.

Hi,

My Name's Siobhan.

I am the face behind the keyboard!

My name is Siobhan Malone McBarron. I am a proud Galway Girl who was born in Galway, Ireland in the April of 1982.​

 

I was diagnosed with muscular dystrophy, a degenerative neuromuscular disease. I decided to write this blog not for sympathy or pity but to show what the reality of living with a degenerative neuromuscular disease looks like.

 

This is my blog about my body, my feelings, and the challenges I face daily. It’s about two battles; the one between my mind and my body. It’s basically a clusterfuck of emotions, frustrations, physical pain and sometimes even mental torture.

 

So why now tell my story.... You've got to read my blogs   to find out the answer. 

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Waves

“And though she be but little, she is fierce”

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